July and August 2010

Well Last month on the 2nd July me and Dean marked my mum’s death of 10 years by putting a new ground down on her grave and making it look like a garden of heaven.

And apart from that the last few months have been a bit up and down for me to say the least, was told I could have a Cochlear implant and then few weeks later I was then told I couldn’t, and by going to see the consultant he looked into my ears to see my brain but couldn’t find it, no on a serious matter, he was a bit concerned about the stuff in my ear he is now sending me for a MRI scan on my head, but then we realised they may not do it as I have titanium implants in my jaws, I tell you my life is complicated and don’t do things by halfs.

So I rang the MRI unit and they are happy to scan me and they will put something over my jaw.

My bladder is knackered, I think a full body transplant is in order.

My Volunteer at One Voice job is good, been there now since April and enjoy it, I am Information and Community Development worker, which I meet like minded people like myself and we all have 1 thing in common we are all disabled in one way or another, and also still the Disability Access Person at the One Voice.

Last week was my 38th Birthday can’t believe in 2 years time I am 40, where does the time go, didn’t do much was ill part of the day, and a bit annoyed has some of my friends had forgotten it was my birthday and 1 said it was because it wasn’t on Facebook so I have taken the step by de-activating my Facebook, but true friends wouldn’t have needed Facebook to remind them.

Wayne

XxX

So much to do so little time.

Hi everyone,

Well the last few months have been a bit of a roller coaster and not had much time to blog, so thought I had better let you know I am still around and what I am up to these days, before I do I hope your all well and keeping strong in this climate we are all in (UK) with the job cuts and benefit changes, also my condolences go out to all those brave soldiers who have sadly died in Afghanistan since I last blogged, and respect to those still out there fighting for our freedom.

Where do I start, well the job I started at One Voice has taken off and I am doing all new things with the Disabled Access Guide it’s taken me places I would have thought and met new people, you can keep up to date with the access work I do on facebook by clicking here and if you want more information on Disability Access issues you can email them webmail@disabilityaccess.info

Dean and myself are working on doing a all new website and also mobile phone version of the guide which is generating great interest from local council and NHS.

We looking at finishing it all by next month, and will be having an official launch for it with the press and officials involved.

I am also doing Diversity work with other organization and last week was at HMP Lancaster Farms and hopefully doing work with them too.

COPD I have been having breathing problems for a few months and went to my GP and I have had test etc, last week I was told I have COPD but won’t know how bad till next week.

Cochlear implants, well has you may know I have been putting off having these done, but few weeks ago I had a test so now I am waiting on going to Preston to see specialist who deals with Cochlear implants.

Remember you can follow me on facebook now click here

I will try and keep you posted more often but it’s a busy couple of weeks ahead so may be after that.

Wayne

One Voice and Disability Forum

Hi there, Well been a busy few weeks went to see my IB officer at the DWP regarding me going back into work, she and I both decided that I would be best to start off doing Part time Voluntary work.

So went to Help Direct and if I am completely honest they weren’t that helpful didn’t feel like I would be part of there team and few days later they telephoned me and asked me for some paper work which I handed in but they couldn’t find it so that also put me off.

Then I went to One Voice Cornerstones and from the moment I walked in and meet a lady called Anne who was very welcoming and helpful I could see me there, anyway she asked me to call back the following week to see the Manager which I did.

Following week came and went to see Jo another nice lady who made me feel welcomed and invited me back to a Disability Forum Meeting the following evening, I worked in the building many years ago when it was a day centre and I was doing my Mental Health Training.

So attended the Disability Forum Meeting which was informative and I was asked on to that group which also has a Working Group on Wednesdays so I am doing that now.

On the Tuesday after I met another wonderful person called Tony who runs the One Voice Access Guide which is like a directory of places that other a wide range services for disabled people.

So I am now working on the One Voice Disability “Good Access Guide 2010/2011″ so I am busy and very much enjoying it too.

Some pages for you if your on Facebook.

Access for All

One Voice Access Guide

Disability Forum

Hope your all well.

Love Always

Wayne

X

COPD

Well was at the Doctors on Friday just gone and he wasn’t that happy with my breathing so today (Monday) I have been to the local Hospital for a Chest X-Ray.
I am worried as COPD is in my family, has some of you may know my Mum had it and my 2 aunties had it so it’s very much at the front of my mind.

I was born like my mum with a Cleft Palate and Bone problems so the Doctors and Hospital do check me regular for chest problems but this first time I have been with a complaint with my chest.

What is COPD

Chronic obstructive pulmonary disease also known as chronic obstructive lung disease,  is the main term used to describe chronic lung diseases that are characterized by progressive limitations of the airflow into and out of the lungs, and increased shortness of breath as the disease progresses.

COPD, an insidious disease which is often first diagnosed after some of the lung capacity is already lost, is usually not fully reversible. It is possible to have early stages of COPD without knowing it.

The common characteristics of COPD are:

Shortness of breath:

breathlessness during normal activities
decreased exercise tolerance

Wheezing:

changes in your breathing

Chronic Cough:

excessive phlegm (mucus) production
morning “smokers cough”

Recurring respiratory infections:

bouts of bronchitis every winter

Prevention is the thing here, YES until recently I was a smoker and enjoyed it, but now I do regret starting, I know I may not have COPD but I could have it later in life so by not smoking I reduce the risk of me getting it, but if I have it then I reduce the risk of it getting hold of me by not smoking.

I could go on and on about COPD but it easier to take a look at this wonderful site Click here

And if you need to help to kick the habit Click here

Remember anyone can have COPD best to be safe than sorry.

Updated Blog April 2010

Another few weeks have passed since last blogged, so I will bring my followers up to speed on things.

Dean has had more and more Migraines and 3 weeks ago he finally got to see the consultant at the hospital who put him on Propanol and Naprox for the and ordered a CT Scan of his brain which he had yesterday (Wednesday 8th April) and now we have to wait on another appointment for him to get results, but think the medication is finally having some effect.

Over the Easter break we had Deans 2 younger sisters Michelle and Lisa for a week, it was hard work as it been a good few years since last had them, but even though it was hard work it was fun, but never known 2 sisters argue like these do, we took them out where ever we could weather permitting that was.

Michelle is at High School and think Dean thought she was still his little baby sister but she growing up now and more responable for her self, he helped her do her homework which they both enjoyed doing I think and she is like Dean in a lot of ways well I think she is.

Lisa is still only tiny looks like a little doll, the stuff she was doing and saying was bloody funny, she was quite happy drawing and playing her made up games.

The UK General Election has been called for 6th May 2010, and now we have election fever, most of the TV programmes have been changed to come into play for the run up to the election.

For the 1st in UK History all the 3 main party leaders Labour , Conservatives , and Liberal Democrats will have 3 live TV debates on the 3 main channels ITV on April 15th  SKY April 22nd and finally BBC on April 29th so they are all hoping that this will give them the Keys to Number 10 Downing Street .

But the news is rife that this election would have us having a Hung Parliment last one was in 1974 so happen this is the year for one, who knows will have to wait till May 7th when its all done and announced.

Well not much more to say at the moment so will blog soon.

Remember you can follow me on Facebook and Twitter

The Last Week

Been a tough week since we found out about Deans granddad (papa) we have both gone through the motions of Saddness, Emotional and Anger.

We have both been to Deans Mums and our steps dads, it was stranged at 1st with not speaking to them for nearly 3 years but we all got on with the travel arrangements.

Dean took his sister Michelle to see “Alice in Wonderland” on the Thursday and then Lisa to the “Princess and the Frog” on the Saturday which was nice and good to see Dean with his sisters and they both had tea at ours.

We managed to get some funds together and make the trip from Lancaster to Tomatin where Papa lived.

So we left Lancaster at 2.30am Monday travelled up with Deans mum Wendy to the Highlands via Glasgow, Inverness and Beauly and then onto Tomatin with a old friend of Deans family.

the service was in a little old chapel it reminded me of “little house on the prayer” and there was a great lot of people there, I sat behind Dean as I felt that only Immediate family should only be sat on the front row but seemed everyone sat everywhere, but I was OK with this I didn’t mind as long as I could see Dean and he was sat next to his mum.

His Mum after felt she shouldn’t have been sat on the front but I dis-agreed as she had his 3 Main grandchildren and as these 3 where the main family there it was only natual that a mother would want to be with her children.

The service was lovely but there was an element that I did feel it was about 1 person only and this was felt by others and Dean but told him to leave it as it wasn’t the time of place for anything like that.

After the service Dean and his brothers walked the coffin out into the grave yard then they carried it to the grave and I will say I felt for these 3 having this on there mind for every now, but these 3 men had done there Papa proud and he would have been so proud of them.

Papas own children ie Deans Dad and uncles and aunties, where no where to been seen, but they had been up in the week to empty the house and get what they want like vultures they are, after one thing and may be it’s not my place to say it but I am going to say it “I think they have no respect for the dead and no respect for there family and children has well as there late father”

But Papa would have known who was there to send him on his final journey and he would have known what the 3 grandchildren did for him.

After this we all went to the local pub where Papa was a regular for many years and they laid on a lovely buffett and drinks but I can not get my head round the fact of eating after a funeral, anyway it was nice to have a few hours to remember Papa, while there me and Dean went the few steps to Papas house to look and Dean placed 1 red rose on the door step.

We couldn’t stay long as we was back travelling at 6.15pm so got lift to the station and headed back home returning at 3am Tuesday morning.

Dean slept on and off on the way there and back and Wendy on the way back, but I couldn’t either sleep there or back I can’t sleep while traveling anywhere.

So it was a long  journey there and back but worth it for Dean to pay his last respects to his Papa and stand with his head held high with his brothers.

The journey was good and Dean and I had a nice time with his mum considering the circumstances why we was travelling to Scotland

I am glad we went as Dean at 1st was unsure to go because of funds and personal reasons but I would have thought if he hadn’t had gone he would regret it later on.

RIP Richie Steventon.

Puts Things Into Perspective

When we receive bad news of a loved one or a dear friend who has passed away it really does puts things into perspective and makes you really look at life and the situations.

Having the news we had yesterday, regarding Deans Granddad (papa), as well as thinking of my babe and giving him all the support that he needs at this sad time I have been thinking of where we have been and where we are going.

Dean never saw his papa for over 4 years due to a fall out and I feel for Dean and I know he is hurting inside, but when you’re in a situation and like families do fall out, you don’t think that you may or may not see them again and nothing in the world will or can change paths of life.

Dean like me has a strained relationship with his family and I have never stopped Dean seeing his family it’s his choice alone and I’ve supported it and respected it, like it’s my choice alone that I don’t see my family and I have chosen to cut all ties with my father because he has not been there for me ever and when he was it was on his terms so he had the chance he blew it on a few occasions and for that reason I don’t see him, I pass him by in the street and in the pubs regular as if he was a stranger, Yes I have his name but what’s a name these days.

It’s the same old saying it one thing calling yourself a father but it’s another thing being one, I have my step dad and my mother to thank for my upbringing and I very thankful for the upbringing they both gave me because I am who I am now thanks to the way they brought me up, and some say I am like them sometimes as I can be stubborn but I don’t see it myself, I do regret some of my actions over the years and I have to live with them, but I can’t turn back time.

The hardest thing is thinking you may not see people again and that can be very hard to digest, I would love to turn back time and have my time with my mum again but I can’t, but I am lucky in a way I was there for her final years, months, days and hours, and for her final journey.

But Dean still has a mother and father, and people always say you can have many dads (I don’t believe that) but you have only 1 mum and that I do believe in, who for various reasons Dean doesn’t have contact with them, which when it comes to your parents it’s sad that you fall out for 1 reason or another.

Live is a like a rollercoaster up and down, and you will fall off at stages and try to get back on, sometimes you will get straight back on and sometimes it will be hard to get back on, but you will fall off and not get back on again!!!

But that’s how we learn and understand things and it’s part of our growing up, I am lucky to have been brought up with respect and to respect others and their feelings but like everything in life it’s not always that simple.

And you have to make important decisions in life and take measures in life that may and will effect, anger and upset others around you, Take us moving away, we couldn’t have continued where we was because of events beyond our control and of not our doing that happened in the months before Christmas, if we hadn’t taken that big step to move away, and it wasn’t a decision taken lightly but we hadn’t god knows what would have happened.

You can’t live your life to please others or live it around people or through other people’s lives; you have to take actions and be responsible for them and take the stress and flack that will bring.

Some people think that everyone who smiles and laughs has the perfect life, but how wrong these people can be, we would all like to live in the prefect world but we don’t.

It’s sad that it sometimes takes a death to make you look at your lives in a new light, but for the love in the world we can’t turn back time and start over again, we can only hope that one day bridges can be built so we can all walk over them together and in harmony.

What I am trying to say is life is far too short and to predictable to let it pass you by and then have regrets later in your own life because you have missed someone else’s life, so try and if possible make time for the loved ones in your life and hold on to that love has it can be taken away at anytime.

I have had my time with some of the people who I cared about and loved very much but most of them have now passed on, but if you haven’t had this and you can have it then crab it with both hands before it passes you by again and for the final time

I have always supported Dean with his choice and I respect his decisions and I will continue to support him whatever he chooses now and later in time, because that’s what you do when you love each other, like he has supported my choice and respected my decisions.

So If your reading this and have loved ones who you don’t see for 1 reason or another and if it’s possible for you to have time with them then do it now before it’s too late.

Wayne

XX

Shocked

Well yesterday had a message via a friend on facebook for Dean to contact his mum and it was bad news and very important, we managed to find there number and rang her.

The news was a shock that Deans grandad (papa) had passed away has yet unsure of the cause but he had quite a few illnesses.

Dean has gone quite and withdrawn but that’s how he copes and I am with him all the way, also unsure weather we will be able to attend the funeral with Dean going into hospital soon himself but he knows I will support him what ever he decides, but won’t know till Dean rings his mum tomorrow, so until then we can’t make arrangements.

It’s a nice day today weather wise so we going to take Fido for a walk, and nip to town.

Bye for now

X

A Long Time

Hi there my friends well been a good few months since my last post and I am sorry if you have been wondering where I’ve been.

Me and the hubby Dean have moved home.

And I can tell you apart from the fact the new place is lovely and what we wanted but most of all away from Morecambe (with all the crap we was having) it has been a bit stressful to say the least.

We had trouble getting the phone put on took a few weeks and when they put on (BT) they connected us to someone elses phone so people ringing us got someone elses home.

So after few days we get an Engineer comes out and removes a box says that was the problem and puts in new one and we finally get phone a working one.

Then it comes to sorting the Broadband out just before we moved (as didn’t exspect it to happen so quick) we signed upto Sky Broadband so had to sort of like have it at new place so we was told be on within 2 weeks and given a date that it would be active etc, the date arrives and nothing happens so waited till midnight like they said too, and still nothing anyway cut a long story short, we have had such hassel with Sky over the broadband and they where saying it was BT fault and BT saying it was Sky’s this went on for days then into weeks so we sacked off Sky and gone back to BT and we still waiting on being connected to BT Broadband, thank god for PAYG Dongles.

Dean been suffering badly with his Mirgraines we finally got an appointment with the Neurologist to find out why he gets them all the time so waiting for that  and in a strange way it can’t come quicker as it’s not nice seeing someone ill and you know you can’t help them…:(

I finally got my teeth sorted and today went for final check up, Metal implants are firmly in place in my gum and jaw bone and teeth have settled in nicely and was discharged.

So I would like to say this, a MASSIVE THANKYOU to My Babe for putting up with me moods, tear, pain Love you loads couldnt have done this without you by my side XXXX and thanks to Mick Emmerson and Emma Cutherbertson for taking me to appointments in your cars and also to Amanda Busby and Sarah Emmerson for keeping me company on the train journeys THANK YOU I WILL ALWAYS REMEMBER WHAT YOU HAVE DONE XXXX

Still having other treatment but that will be on-going as said in previous blogs.

So been a bit of stressful move but seems to be getting on ok now and hopefully it won’t be too long before we have Broadband on and I will be back to blogging regular again.

I hope you are all well and look forward to your comments.

Remember you can follow me on Twitter or Facebook

WC

X

Daily Blog 4th – 11th Jan 2010

Monday

Well today Dean has been helping Emma and Mikela move flat and I looked after there cats at our home and at same time wait for a delivery to arrive, so been a very boring day really.

Been doing my CBB Blog during the day so you can keep up to date with my CBB news here

Well got a bit on tomorrow so happen today being boring was a blessing for me.

Night

X

Tuesday

Well woke up this morning to snow every where even thou our local forecast was rain and frost, and onces again Britain has snow Britain comes to a stand still, the schools in our area have all been closed, rail services disrupted.

So yes it’s Cold and bloody wet and that just in the bedroom he he he, No serious this snow is bad here in UK we are right on the coast with Morecambe Bay and it’s like being in the Antartic at times with the bitter cold and icy wind with the snow.

What I can’t understand is why is it when the UK gets snow the rail and roads come to a halt, it’s not like we never ever had snow in the 2000 years we been on earth, anyway on the News they say it going to get worse and be like it way into late January

And what about Us Brits going out and panic buying in the supermarkets and buying loads of cat litter to spread over there drive ways.

Snow or no Snow I needed to go to the doctors and it took us nearly 1 hour to walk there where normally it takes about half hour, but got there in the end.

Well the doctor has put me on some new medications so that another 1 to add to my collection.

Epilim 200mg (2 Daily)

Mirtazapine 30mg (1 at Night)

Tramadol Hydrochloride 50mg (8 Daily)

Meloxicam 7.5 mg (1at Night)

Amitriptyline 10mg (1 at Night)

Paracetamol 500mg (8 Daily)

Tolterodine 4mg (1 at Night)

Omerprazole 20mg (2 Daily)

Creaon 100000mg (8 Daily)

Movicol 13.8g (When Needed)

Ventolin 100  (2 puffs Daily)

Nasofan Aqueous (4 puffs Daily)

Any way off to bed to keep warm.

Night

X

Wednesday

Well didn’t wake up till 13.oo (1pm) this is due to me taking my new medication last night,  took it around 22.00hrs (10pm) and within about an hour I was fast asleep and then next thing I knew it was the following day and afternoon.

But thats 1st time I have had a good nights sleep in a long time so not bothered.

Today we recieved a nice call today regarding a new house / home can’t say too much until after tomorrow when they ring us back.

This evening went to Morrisons with our friends Sarah and Mick has we need to stay home tomorrow until we have recieved that important phone call.

Another Snowy and Cold day here in Morecambe like many parts in the county and on the news they say it’s going to get worse as we head to the weekend.

Off to bed now.

Night

X

Thursday

Well we stayed in all day today has we was waiting on that important phone call, and it didn’t come till after 17.00hrs (5pm) anyway it was good news and now we meeting them on Monday hope the good news continues.

But going to the area to look tomorrow to see what its like hope it’s nice and what we want.

Apart from that we not done much or been anywhere so not lot to say tonight sorry !!!

Good Night

X

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